17th September 2024, Athens 09.00 am. — 02.30 pm.
National Gallery, Museum Alexandros Soutsos, Athens, Greece
Agenda
8:30 — 9:00 am
Registration and welcome coffee
9:00 — 9:40 am
Welcome addresses:
- Adonis Georgiadis, Greek Minister of Health
- Michalis Damianos, Cypriot Minister of Health
- Donata Meroni, Head of Unit – DG SANTE – European Commission
- Theano Karpodini, Head and Chairman of the Board of Directors of National Organization for Health Care Services (EOPYY)
- Charalambos Papadopoulos, President of the Cyprus Patient Association Federation (OSAK), President of the Cyprus Alliance for Rare Disorders
- Dimitrios Athanasiou, Vice President Rare Diseases Greece – RDG, EURORDIS, Patient representative in EURO-NMD, PCWP Member in EMA
9:40 — 9:55 am
Directive 2011/24/EU: Framing patients’ rights and entitlements to healthcare in the EU – The role of the National Contact Points. – Vasiliki Koukou, Coordinator of the Greek National Contact Point (NCP) for Cross-border Healthcare – EOPYY 📑
Session 1: Patients’ rights in the state of treatment
9:55 — 10:05 am
Access to healthcare in the EU/EEA member states under the Social Security Regulations 883/2004 & 987/2009 and Directive 2011/24/EU. – Nikos Kikilias 📑
10:05 am — 10:15 am
Country support, national strategies and frameworks on quality of care and patient safety in the EU. Christos Triantafyllou 📑
10:15 am — 10:25 am
Support and assistance services to EU citizens for accessing healthcare in member states – Hans-Diedrich Druener, Policy Officer, DG Grow, European Commission 📑
10:25 — 10:55 am
Πάνελ Ομιλητών:
- Lilian Venetia Vildiridi, Secretary General of Health Services, Hellenic Ministry of Health
- Kalliopi Koumpi, Director-General for Financial Affairs, EOPYY
- Nikos Kikilias, Director for International Insurance Affairs, EOPYY
- Christos Triantafyllou, Project Officer Quality of Care, World Health Organization (WHO) Office in Athens
- Anastasios Samouilidis, Attorney at Law, Government Affairs Officer, Greek Patients’ Association
11:00 — 11:30 am
Coffee break
Session 2: Patients’ rights in the state of affiliation
11:30 — 11:40 am
Patients’ rights in the state of affiliation: authorizations, reimbursement of costs and administrative procedures. – Anastasia Christodoulidou & Sotiris Stratis 📑 & 📑
11:40 — 11:50 am
Patients’ rights and their role in health policy making – Miltos Miltiadous 📑
11:50 — 12:00 pm
Electronic Health services supporting the European Health Union. – Dr Marios Neofytou 📑
12:00 — 12:30 pm
Panel discussion:
- Anastasia Christodoulidou, Cyprus NCP for Cross-border Healthcare, Head of Sponsored Patients Department, Ministry of Health of Cyprus
- Kalliopi Koumpi, Director-General for Financial Affairs, EOPYY
- Dr Marios Neofytou, Senior Officer at the National eHealth Authority of Cyprus and Head of the NCP for eHealth Services
- Miltos Miltiadous, President of the Cyprus Thalassaemia Association, Member of the Health Insurance Organizations (HIO) Board of Directors
- Giulio Gallo, Senior Expert – DG SANTE – European Commission
Session 3: European Reference Networks for Rare Diseases
12:30 — 12:40 am
Operating European Reference Networks: policies, organization and cross-linking of EU eminent clinics and hospitals – Dr Maria Papadopoulou 📑
12:40 — 12:55 am
Opportunities and challenges for the integration of European Reference Networks into national health systems and the role of patients’ organizations. – Dimitrios Athanasiou 📑
12:55 — 13:05 pm
Patient experience of using the European Union Regulations 883/2004 – 987/2009: Advantages for small EU countries citizens and weaknesses. – Dimitris Genethli, Secretary of the Board of Directors of the Cyprus Alliance for Rare Disorders 📑
13:05 — 13:35 pm
Panel discussion:
- Dr Violeta Christofidou Anastasiadou, Rare Diseases Expert, Representative for Cyprus on the Board of Member States for ERN Chair, National Committee for Rare Diseases
- Dimitrios Athanasiou, Vice President Rare Diseases Greece – RDG, EURORDIS, Patient representative in EURO-NMD, PCWP Member in EMA
- Dr Maria Papadopoulou, Child Neurologist at the University Hospital of Lyon
- Sophia Polychronopoulou, MD, PhD, President of the Hellenic Society of Paediatric Hematology Oncology
- Donata Meroni, Head of Unit – DG SANTE – European Commission
13:35 — 13:45 pm
Conclusions of the workshop
13:45 — 14:45 pm
Lunch & coffee
